Table 1 Categorization of the analyzed components – examples of patients’ statements in the KILEN consumer reports ¹

“Difficulties concentrating at work, having suicidal thoughts.”

Patient experienced suicidal thoughts.

Experiences of drug treatment

Severe psychiatric adverse reactions

“And when the death wish comes, I become so afraid that I start again.”

Patient experienced feelings of wanting to die when trying to end medication.

Discontinuation symptoms

“When I first started taking it I received NO [sic!] warnings of adverse drug reactions.”

Patient received no warnings of side effects from the doctor.

Lack of communication

“Decided that after three years of ‘chemical terror’ to discontinue, WITHOUT [sic!] doctor’s approval.”

Patients decided to end drug treatment without telling the doctor.

Trust and distrust